Megan grew up in a family of all girls. Now she is the mother of four vibrant boys. Her two middle boys are on the autism spectrum and one of those sons also has a rare genetic syndrome. They also manage anxiety and a lot of behavioral challenges. Her family members are all very different, but they fit together complementing each other like pieces of a puzzle.Jack is Megan’s second son. He was born with what looked like a rash all over his body. After referrals to a dermatologist and geneticist, he was diagnosed with macrocephaly cutis marmorata telangiectatica congenita syndrome. Like many other rare syndromes, there wasn’t a lot of information for them about what to expect, but they knew there would be a lot of cognitive delay. When Jack was two and a half, he was diagnosed with autism.
Charlie came next. His anxiety presented itself when he was quite young, but he was nearly four by the time he was also diagnosed with autism (high-functioning). Having a second child diagnosed with a disability was really difficult for Megan. Over time she has been able to provide her sons with the resources they need to thrive despite their challenges.Even though both boys have autism, they are pretty much on opposite ends of the spectrum and Megan admits that both sides are quite difficult. There are challenges to both. Disabilities that aren’t readily noticeable are often referred to as invisible disabilities. When someone can’t tell what your child’s challenges are it can be difficult for them to have accurate expectations. We talk about dealing with that and ultimately conclude that the more we can talk, write and share about our children’s disabilities, the easier it will be for others to treat them appropriately.Tune in to hear more about the unique relationships that have developed among Megan’s boys, how Megan takes care of herself amidst the chaos and challenges of the day-to-day, and how having disabled children has enriched her life.Oh, and here’s Megan’s article on siblings of special-needs children. She writes a fantastic blog called To Our Survival about parenting her special needs kids.